Helpful Numbers
- Alcohol and Drug Abuse Hotline – 1-800-729-6686
- CDC National Health Information Hotline – 1-800-CDC-INFO (232-4636), 1-888-232-6348 (TTY)
- Department of Defense (DOD) Safe Helpline for Sexual Assault – 1-877-995-5247
- Florida AHCA Medicaid Program Integrity – 1-888-419-3456
- Florida Attorney General – 1-866-966-7226
- Florida Department of Children and Families – 1-800-962-2873
- Hotline for Youth Programs and Crisis Intervention – 1-800-246-4646
- National Center on Elder Abuse – Eldercare Locator – 1-800-677-1116
- National Center for Missing and Exploited Children – 1-800-843-5678
- National Dating Abuse Hotline – 1-866-331-9474
- National Domestic Violence Hotline – 1-800-799-7233
- National Human Trafficking Resource Center – 1-888-373-7888 Text: 233733
- National Patient Notification System – 1-888-873-2838 (888-UPDATE-U), www.patientnotificationsystem.org
- National Runaway Safeline – 1-800-786-2929
- National Suicide Prevention Lifeline – 1-800-273-8255 or dial 711, then 1-800-273-8255 (TTY)
- Poison Control- 1-800-222-1222
- Substance Abuse & Mental Health Services Administration (SAMHSA) Hotline- 1-800-662-HELP (4357)
- U.S. Centers for Medicaid & Medicare Services 1-800-MEDICARE (1-800-633-4227), 1-877-486-2048 (TTY)
- U.S. Department of Health and Human Services HIV/AIDS – 1-800-HIV-0440 (448-0440), 1-888-480-3739 (TTY)
Complaints & Grievances
Patient Complaint Policy
A patient and/or family member has the right to freely voice grievances and recommend changes in their care or services without fear of reprisal or unreasonable interruption of service. Service, product and billing complaints will be communicated to the Pharmacist-in-Charge and Board of Directors.
The complaints will be documented in the pharmacy complaint file and complaint file and completed forms will include:
- Patient Name
- Address
- Telephone Number
- Medical Record Number
- Date of the Complaint
- Summary of the Complaint
- Name of the person making the complaint
- Name of the person taking the complaint, date and time
- Summary of Actions taken to resolve the complaint
All complaints will be handled in a professional manner. All logged complaints will be investigated, acted upon and responded to in writing, E-mail and/or by phone within 3 business days (72 hours for North Carolina Home Care patients) or sooner from the day of the receipt of the complaint. If there is no satisfactory resolution of the complaint, the next level of management will be notified progressively.
In addition, the pharmacy/home health agency/home care agency will assist the patient in contacting the appropriate state agency or third-party payer (health plan) if needed.
You may also file a complaint with the Florida Board of Pharmacy:
Florida Board of Pharmacy
4052 Bald Cypress Way, Tallahassee, Florida 32399
Phone: (850) 245-4125
For patients in Maine, you may file a complaint against the pharmacy with:
Complaint Coordinator
Office of Professional and Occupational Regulation
35 State House Station
August, ME 04333
For patients in Texas, complaints concerning the practice of pharmacy may be filed with:
Texas State Board of Pharmacy
William P. Hobby Building, Suite 3-500
333 Guadalupe Street Austin, Texas 78701
(512)305-8000
www.pharmacy.texas.gov
- To report suspected Medicaid fraud, please call AHCA Medicaid Program Integrity toll-free at (1-888-419-3456) or the Attorney General toll-free at (1-866-966-7226)
- To report a complaint regarding the services you receive, please call the Agency for Health Care Administration toll-free (1-888-419-3456)
- To report abuse, neglect, or exploitation, please call the Florida Department of Children and Families toll-free (1-800-962-2873)
- Florida Relay service, dial 7-1-1 or 1-800-955-8771 (TTY)
- To file a complaint with the NC Division of Health Service Regulation
- By Phone→ Complaint Hotline: 1-800-624-3004 or 919-855-4500
- By Fax→ 919-715-7724
- By Mail→ Complaint Intake Unit 2711 Mail Service Center Raleigh, NC 27699-2711
ACHC will document and investigate all complaints received against our currently accredited organizations or against ACHC. Complaints may be submitted to ACHC via mail, phone, email, fax, or online. ACHC regards all complaints as confidential and it is our policy to protect your name. However, it may become necessary to reveal your identity in order to validate your complaint.
To file a complaint with ACHC, please contact ACHC’s Complaints Department at: (855) 937-2242
If a beneficiary is not satisfied with the management response, the individual may also contact URAC at: https://www.urac.org/contact/file-a-grievance
Get information on filing complaints in your state here
Disaster & Recovery Resources
- Federal Emergency Management Agency (FEMA) https://www.fema.gov/locations
Search by zip code, city, town, or state to get more information on local disaster recovery - List of Emergency Departments by State
- Florida Emergency Management- Evacuations and Shelter and the Special Needs Registry
Education & Disability Resources
- Americans with Disabilities Act of 1990: www.ada.gov
- The ADA provides protection for people with disabilities from certain types of discrimination.
- Continuation of Health Coverage: www.dol.gov/general/topic/health-plans/cobra
Information on Consolidated Omnibus Budget Reconciliation Act (COBRA). - National Disability Rights Network: www.ndrn.org
The U.S. federal government’s disability-related Information and resources. - Social Security: www.ssa.gov/disability
A search tool to find resources in your state to assist with school rights and advocacy. - National Institute of Neurological Disorders and Stroke (NINDS): www.ninds.nih.gov
Financial Assistance Programs
- IV Solutions Rx Financial Assistance helps connect eligible patients with financial assistance through advocacy programs, foundations, drug manufacturers, and other sources. Whenever possible, we collaborate with local community organizations to offer individualized solutions to overcome financial barriers so our communities, including underserved populations, get the healthcare they need. We can be contacted using our email at info@ivsolutionsrx.com or our phone number at 844.650.5802
- Patient Advocate Foundation: www.patientadvocate.org
Patient access to care, maintenance of employment and financial stability.
Phone: 800.532.5274 - Accessia Health
Specializes in health insurance premium assistance for PIDD and CIDP.
Phone: 800.366.7741 - National Organization for Rare Disorders: www.rarediseases.org
Disease-specific support groups patient assistance programs. - Needy Meds: www.needymeds.org
A 501(c)(3) nonprofit with the mission of helping people who cannot afford medicine or health care costs. The information at Needy Meds is available anonymously and free of charge. - RxAssist: www.rxassist.org
Offers a comprehensive database of patient assistance programs, as well as practical tools, news, and articles so that health care professionals and patients can find the information they need. Patient assistance programs are run by pharmaceutical companies and may provide free or discounted medications to people who cannot afford to buy their medicine. Individual co-pay cards may be found for specific medications to help patients limit their out of pocket medication expenses.
Foundations & Associations
- American Autoimmune-related Disease Association – 1-800-598-4668
- Immune Deficiency Foundation- 1-800-296-4433
- American Cancer Society – 1-800-227-2345
- American Diabetes Association – 1-800-342-2383
- American Heart Association – 1-800-242-8721
- American Lung Association – 1-800-LUNGUSA (586-4872)
- American Liver Foundation – 1-800-465-4837
- National Psoriasis Foundation – 1-800-723-9166
- Leukemia and Lymphoma Society – 1-800-955-4572
- Lupus Foundation of America – 1-800-558-0121
- National Multiple Sclerosis Society – 1-800-344-4867
- Myasthenia Gravis Foundation of America (MGFA) – 1—800-541-5454
- National Organization for Rare Diseases (NORD) – 1-800-999-6673
- National Hemophilia Association – 1-800-424-2634
Home Safety-Fire Safety Tips
Legal Resources – Advanced Directives
- Advanced Directives by State by AARP
- Florida Advanced Directives from the Florida Agency for Healthcare Administration
Medical Research Studies and Related Information
- Clinical Trials: www.clinicaltrials.com
This site has a registration form to request that You be notified about recruitment for future studies. - Clinical Trials: www.mdanderson.org/patients-family/diagnosis-treatment/clinical-trials
This is a registry of federally and privately supported clinical trials conducted in the United States and around the world. - Clinical Trials: www.cancer.net
This is an oncologist approved cancer information website from the American Society of Clinical Oncology (ASCO). They describe the site as having trusted, compassionate information for people with cancer and their families. - Clinical Trials: www.cancer.org
This is a website from the American Cancer Society that discusses cancer research, patient services, early detection, and education. - The Leukemia & Lymphoma Society: www.lls.org
The mission of this group is to cure leukemia, lymphoma, Hodgkin’s Disease and myeloma and improve the quality of life of patients and their families. - Lymphoma Research Foundation: www.lymphoma.org.
This foundation exclusively funds lymphoma research and supports those impacted by this blood cancer. - Lyme Disease Foundation: www.lymedisease.org
Prevent early Lyme disease from becoming chronic and to help patients gain access to care.
Patient Education
- Flushing an IV Catheter
- Infection Control from the Association for Professionals in Infection Control and Epidemiology (APIC)
Immune Globulin Product Info
ADMA Pharmaceuticals Products:
- IVIg Bivigam®:www.bivigam.com
- IVIg Asceniv™:www.asceniv.com
Bio Products Laboratory Products:
- IVIg Gammaplex®: www.gammaplex.com
CSL Behring Products:
- SCIg Hizentra®: www.hizentra.com
- IVIg PrIVIgen®: www.privigen.com
Grifols Products:
- IVIg Flebogamma®:www.flebogamma.com/
- IVIg/SCIg Gamunex-C®: www.gamunex-c.com
- SCIg Xembify®: www.xembify.com
Kedrion BioPharma Products:
- IVIg/SCIg Gammaked®: www.gammaked.com
Octapharma Products:
- IVIg Octagam®: www.octagamus.net
- SCIg Cutaquig®: www.cutaquigus.com
- IVIg Panzyga®: www.octapharma.com/products/product-overview/panzyga
Takeda Products:
- IVIg/SCIg Gammagard Liquid®: www.gammagard.com
- IVIg/SCIg Gammagard S/D®: www.gammagard.com
- SCIg Hyqvia®: www.hyqvia.com
- SCIg Cuvitru®: www.cuvitru.com
Resources for Specific Conditions
Crohn’s and Colitis
- Crohn’s and Colitis Support Online: www.mycrohnsandcolitisteam.org
- Crohn’s & Colitis Foundation: www.crohnscolitisfoundation.org
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
- www.aanem.org
- Genetic and Rare Diseases Information Center (GARD): https://rarediseases.info.nih.gov/diseases/6102/chronic-inflammatory-demyelinating-polyneuropathy/
- PolyNeuro Exchange (a CSL Behring site): https://www.polyneuroexchange.com
Guillian-Barré Syndrome
- American Association of Neuromuscular & Electrodiagnostic Medicine: www.aanem.org
- PolyNeuro Exchange (a CSL Behring site): www.polyneuroexchange.com
Idiopathic Thrombocytopenic Pupura
- ITP Support Association – UK: www.itpsupport.org.uk
- Platelet Disorder Support Association: www.pdsa.org Phone: 877.528.3538
Multifocal Motor Neuropathy
- American Association of Neuromuscular & Electrodiagnostic Medicine: www.aanem.org
- Neuropathy Action Foundation: www.neuropathyaction.org
- www.polyneuroexchange.com
- Genetic and Rare Diseases Information Center (GARD): www.rarediseases.info.nih.gov/diseases/11011/multifocal-motor-neuropathy
Multiple Sclerosis
- American Association of Neuromuscular & Electrodiagnostic Medicine: www.aanem.org
- Multiple Sclerosis Association of America: www.mymsaa.org
Phone: 800.532.7667 - Multiple Sclerosis Foundation: www.msfocus.org Phone: 888.MSFOCUS
- National Multiple Sclerosis Society: www.nationalmssociety.org
Myasthenia Gravis
- American Association of Neuromuscular & Electrodiagnostic Medicine: www.aanem.org
- Myasthenia Gravis Foundation of America (MGFA): www.myasthenia.org
Phone: 800.532.7667 - Genetic Alliance: www.geneticalliance.org
Myositis
- The Myositis Association: www.myositis.org
The mission of The Myositis Association is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases. Types of Myositis include Sporadic Inclusion Body Myositis, Dermatomyositis, Polymyositis, Necrotizing Myopathy, and Juvenile Myositis. Phone: 800.821.7356 - The Cure JM Foundation: www.curejm.com
- Myositis Association Community Forum: www.tmacommunityforum.com
- Myositis Support Group: www.myositis.org
- Myositis Support & Understanding: www.understandingmyositis.org
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus
- Guide to P.A.N.D.A.S. Syndrome: www.pandas-syndrome.webs.com
- P.A.N.D.A.S. Network: www.pandasnetwork.org
- Behavioural Neurotherapy Clinic – Australia: www.adhd.com.au/PANDAS.htm
Pemphigus and Pemphigoid
- The International Pemphigus and Pemphigoid Foundation: www.pemphigus.org
Phone: 855.473.6744
Peripheral Neuropathy
- American Association of Neuromuscular & Electrodiagnostic Medicine: www.aanem.org
- Neuropathy Action Foundation: www.neuropathyaction.org Phone: 877.512.7262
Primary Immune Deficiency
- The Immune Deficiency Foundation (IDF): www.primaryimmune.org
The national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research. Phone: 212.692.0662 - The Jeffrey Modell Foundation: www.info4pi.org
Dedicated to early and precise diagnosis, meaningful treatments and, ultimately, cures for primary immunodeficiency. Phone: 212.819.0200 - American Academy of Allergy, Asthma & Immunology: www.aaaai.org
- New England Primary Immunodeficiency Network: www.nepin.org
- IDF Common Ground: www.idfcommonground.org
- IDF Friends: www.idffriends.org
- IDF Discussion Forum: www.idffriends.org/forum
Rheumatoid Arthritis and Related Diseases
- Rheumatoid Arthritis Foundation: www.RheumatoidArthritis.org
- Rheumatoid Arthritis Support Groups: www.rawarrior.com
- Psoriasis and Psoriatic Arthritis Alliance: www.papaa.org
- Arthritis National Research Foundation: www.curearthritis.org
- Family Resources to Support Kids with Juvenile Arthritis-Coach Art: www.coachart.org
- Spondylitis Support Online: www.myspondylitisteam.com
- Foundation for Sarcoidosis Research: www.stopsarcoidosis.org
- Lupus Foundation of America: www.lupus.org
Stiff Person Syndrome
- American Autoimmune Related Diseases Association Inc.: www.aarda.org Phone: 586.776.3900
- Stiff Person Syndrome: www.rarediseases.info.nih.gov